Monday, August 7, 2017

Dad's final days

August 6, 2017

I have decided to write one last blog entry to discuss what happened in the last month of my dads life.
                                                        It started out like this:

He would sleep in his recliner; and mom would sit and watch him.  It was during this time that I was more worried about my mom than I was about my dad.  She wasn't eating much; and seemed distant and depressed.
He was angry because he could not find his keys.  We had to hide his keys for fear that he would drive.  He insisted that he was just fine to drive, and that he would let us know when he was not.  He also insisted on going to Bojangles for his morning biscuit.  Mom would take him... he would take a bite or two and then sleep for a while.  She would end up sitting there for over an hour.  I told her many times that she was a Saint - for her unending patience with him.
After Bojangles they would go to the post office where he would get out and go in to check the box.  Mom would wait in the car because to get out and go in with him would make him angry. (He did not need a babysitter!)  One of those mornings at the post office she waited longer that usual for him to come out.  She went in and he told her that he lost the key, and insisted that they purchase a new key for him.  (Because they both needed a PO box key.)
He did not trust me or mom, and he told us.  He continued to "control" his medicine tray because he did not know what we were giving him.  At this point I was very confused, upset, indecisive, anxious, confused, etc...  It was very hard for me to say anything "against" what my dad said.  So, even if it was outrageous - if my dad said it - I wanted to believe it.  He was increasingly "difficult" and did not want us to help him with anything.  It was during this time that I had to continually remind myself... it was his stubborn nature and strong will that made him the great man that he was... 
But, it did make things harder in the end. 

And then it progressed to this:
Around this time mom came out of her sorrow and found her strength! (He's an on time God, Yes HE is.)  I am in awe of her dedication and commitment to my dad. These last couple of years have not been easy.  The heart problems, the chemo problems, the realization that he was getting things "mixed up".  Living in a dark house because the light hurt his eyes...  She never wavered. 


And lastly to this:
  

The last days were very hard.  Watching someone that I love suffer such horrific pain is one of the most difficult things I have ever endured. I would go home to get a shower - and sob uncontrollably. Then I would "dry up" and go back.  Someone had to stay up all night to administer pain meds.  He would try to get up and walk (with someone assisting) until the day before he passed.  The last week was very painful for all of us.  He was on a tremendous amount of medication, but was still in pain.  He insisted on walking to the bathroom - which was very hard on my mother.  Just getting his clothes on and off was a major ordeal!  He stopped eating about a week before he passed.  It was just too difficult.  BUT, in the mist of all this heartache and pain, there was light and laughter. 

My mom, myself, my niece Ashley, and my Aunt Louise, have bonded in ways that would not have happened outside of these circumstances.
My dad provided many moments of "comedy relief" for us -thanks to all the pain medications.  *He "went fishing" with his oxygen tube.  *Insisted that mom put the oxygen tube connector into his shoe. *Using the telephone to change the TV channel.  *Told us when to stop talking.  *Exclaimed "what the dickens!", numerous times. *One of the last times he went to the table for dinner he sat in moms chair and ate her watergate salad.  (They said it was nuttier than usual:)  *He told us to "take my teeth out!" Because they were hurting.  (He had his natural teeth/no dentures)

And then there were God given moments: 
*One night dad "called a meeting".  My mom, Ashley, and I went to his bedside and in a moment of complete clarity, he apologized.  He told us that he knew what was happening in his body and in his mind; and that he was sorry.  He went on to say that it would only be a few more days, and that he loved us.
*He got up (with one of us on each side) and started walking toward the bathroom. He passed the bathroom and kept walking down the hall into the bedroom. He walked all the way to the wall and touched it.  He turned around walked straight down the hall into the other bedroom and walked to the wall and touched it. All the while he was telling us "I have to walk across".  When he got back he had walked the shape of a Cross.  WOW.
*He asked mom if she would be OK; and told her "I'll meet you up there."
*On Thursday night (6/22) he told us that he saw his brother Jimmy. (Jimmy died in 2013)  A few minutes later he told us that he saw Jesus.  I asked what they were wearing and he said they were both wearing white robes.  He then saw two angels and white horses.  Mom asked did he see a multitude of angels? He said, "No, I see two angels."  He continued to tell us that everything was "white as snow". 
*On Monday, June 26, he did not open his eyes... until... the moment of death.  He opened his eyes wide with wonder, and looked off into the distance.  His eyes closed, and he was gone.  Relief.  Peace.  Wonderful Peace.



The last week of his life I stayed with them 24/7  -and my children and husband survived without me.    I would not change a thing; and I have no regrets. 

To Transitions Hospice Care, thank you for making it possible for him to stay at home! A big thank-you to everyone who came to visit with him/pray with him! After he passed we were overwhelmed with the outpouring of support from our family, friends, neighbors, church family... the food, the visits! But what I will never forget is the peace that flooded our souls.  The peace that surpasses ALL understanding.  Thank you God for loving me so much.

We are now trying to figure out what life looks like without him in it. 
  I miss him.



This is a picture taken right outside my front door on Sat. (6/24)  My daughter Rebecca had asked her Papa to put a rainbow in the sky for her.  It appeared the night before she left for camp.  I told her that her Papa was so close to God - he got his order in early. :)



Sunday, August 6, 2017

Late Update

May 24, 2017

The last time I posted an update was in February...  Update on that post - the cardioversion was a success.

On Monday, May 22, 2017 we went to see Dr. Agrawal.  We knew, based on Daddy's symptoms, that the news might not be good.  Following lab work and examination our fears became reality.  The cancer is growing.  The aching in his bones from his shoulders to the soles of his feet - the fatigue - the pain -  the coughing - the Afib - ETC. - is from the cancer. 

(Before we arrived in Dr. Agrawal's office  - I knew.)

On Wednesday morning I posted the following on Facebook:

Please pray for my parents today. We found out on Monday that Daddy's cancer is progressing quickly; and the doctor said it was time to call in hospice care. Unfortunately the hospice has been ordered, but is not in place yet... His pain got to be too much and he is currently in the ER at BJH.

He was in the ER for a few hours until they got the pain under control.  That afternoon the representatives from Transitions Hospice Care arrived. 

Now we will take one day at a time; trusting God.





Wednesday, February 8, 2017

New Plan

As I mentioned in my previous blog, Dad was entering a "time of rebuilding".  We were very optimistic; but things did not go as planned.  Instead of getting stronger and having more energy; he was getting weaker and more tired.  He had appointments with Dr. Agrawal, and with Dr. Emory (his cardiologist).  Diagnosis: Heart/Atrial Fibrillation.  He is currently in route to Rex Hospital where he has a cardio-version scheduled for 12 noon today.  Please pray that this will work!  Even if Dr. Emory has doubts... God is bigger than Dr. Emory. This has to work.
Dr. Agrawal (cancer doc) has decided to re-evaluate him on Feb. 20th.  He moved this date up due to "noises" he heard in his lungs. 
One day at a time.  We will continue to fight.  Please continue to pray.

Thursday, December 29, 2016

Now for the GOOD NEWS

December 29, 2016

Yesterday I accompanied my parents to Duke Raleigh to meet with Dr. Agrawal.  As soon as you arrive they take the patient back for "labs".  (At least they get the needle-work done first - so you don't have to dread it all day:) Then we go upstairs to Dr. Agrawal's office, where we sit in the waiting room for two hours.  Any other doc would not be worth that amount of wait time... but this one is worth it.  (Apparently the week after Christmas is always one of their busiest; and his "right hand" took the week off.) At one point dad said that we were going to leave in 10 minutes.  Just as mom and I were wondering what other stall tactics we could use... they called his name. Relief.

He begins by asking if we are dealing with: memory problems, fatigue, lack of interest, aches and pains, etc.. - and tells us that is normal.  Then he starts looking at the results of the last scan and his current blood work...
hemoglobin - good
liver enzymes - good
no clear signs of progression
...then he says the word... remission.

The six rounds of chemo did what they were supposed to do.  The problems that he is currently experiencing are not cancer related, but chemo related.  (The after effects of the chemo treatments.)  Even though the chemo was necessary to kick the cancer back, it is poison to the body.

Going forward,  the doc suggests a "time of rebuilding".  He prescribed something to strengthen the bones, which he will take through IV.  Hopefully this will help with the aching in his legs and back. He will get the IV, labs, and meet with the doc once every month.  He suggested that this would be a good time to incorporate immune-system supplements, light exercise, increased social activity, healthy eating habits, etc...  He actually suggested that he go to the gym!  He said that the social interaction could help him regain some of the memory that the chemo has stolen from him.

At this point I must stop and remind myself that he still has an aggressive form of cancer.  It is there - it is just not growing today.  Therefore, we must take full advantage of this "time of rebuilding", so when the monster decides to start moving he will be strong and able to fight again.

Thank-you God for answered prayer.


Feel free to leave comments below.  It is my hope that our transparency will benefit others.

Monday, November 28, 2016

Test Results

November 29, 2016

Mom and Dad met with Dr. Agrawal today.  The results from last weeks test show not much change in the lungs and liver since the last CT scan.  However, they did find that the cancer has now spread to his bones.
He is receiving chemo this week (Mon, Tues., and Wed.).  After this weeks treatments he will not return to the doctor until after Christmas.  (That's when they will start a new chemo treatment.)
Friends, please continue to pray.  "I'm not giving up." -Dad

Tuesday, November 15, 2016

November Update


Chemo/Round 5 was a couple of weeks ago... he got through it like a champ.

This past Monday he was scheduled to begin round six.  After some lab work and a visit from Dr. Agrawal; it was decided that he was not strong enough for chemo this week.  New Plan:  While he was there on Monday they gave him an infusion of fluids and iron.   On Thursday of this week, he will return for another infusion.  Next Tuesday (Nov.22) he will go in for another infusion, an MRI, and a CT scan.

They will try again to start his sixth (and final) round of Chemo on November 28th (29&30)

These types of treatments do a number on a person’s body and mind.  Please continue to pray for him.  He does have a secret weapon... a positive attitude!   

A personal note about my dad...

As I was growing into adulthood I always knew I could count on my daddy. If something was broken, I called him and he fixed it.  If my heart was broken, I called him and he listened.  When I messed up real bad, I called him (and cried so hard he couldn't understand a word I was saying) ... he picked me up, dusted me off, helped me find a solution to my problem, and sent me out again - without condemnation.  (He did not have to tell me how disappointed he was - I already knew that.)  He allowed me to make my own mistakes, and learn from them.  Life is not always easy, but I had a good teacher.  He taught me to stand up for what was right.  Make amends when I needed too.  Always be kind to others.  By example, he showed me how to work hard, follow your dreams, and help others.  I did not have a lot of "things" as a child, but I always knew that I was loved.  That, my friends, is one of the greatest gifts you can give a child. 
Thanks Dad, I Love YOU.






                                       Feel free to leave comments below.  It is my hope that our transparency will benefit others

Tuesday, October 11, 2016

October Updates

October 11, 2016

Daddy had his 4th Round of chemo last week. (Before Hurricane Matthew arrived!)
He received treatments on Mon, Tues, and Wed. - and on Thurs. he stayed in the bed and rested.  Since then he seems to be doing well except for the typical fatigue and digestion issues. 

He will receive two more rounds of chemo.  The chemo will be complete after the 6th round. 
*For clarification purposes:  Each "round" is three treatments - one treatment per day, for three days in a row.  Then they wait two weeks between each round.* 

Following the 6th round, he will return for another CT scan.  Then we will enjoy the holidays together.  After three months they will do another CT scan and decide if he is strong enough for more chemo.  If not, other arrangements will be made.

This is where it gets real folks.  Yes, this is an aggressive form of cancer.  But, he has done extremely well and I know that GOD has the last word.  Keep Praying.





Feel free to leave comments below.  It is my hope that our transparency will benefit others